No Straight and Simple Road

... Or - The story of how a thirty-something single gal entered into a co-parenting agreement to have a baby with her ex-boyfriend, and then they got back together, and then had a baby with Joubert Syndrome, an incredibly rare neurological genetic disorder. Between being a new couple, new parents, and all that comes with a special needs baby, see how they're coping today!

Tuesday, July 21, 2015

The Final Post... Thank You for the Amazing Journey

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First – I want to start by thanking everyone. This little blog of mine has had almost 15,000 page views. It was very therapeutic to share...
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Monday, July 20, 2015

What Does This Mean for Baby #2?

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Family Pic at Ethan's 2nd Birthday party It means a whole lot more than we thought it did. For this blog post I'll just set it ...
Sunday, July 19, 2015

What is Joubert? How Bad Can It Be?

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I feel in a way we've almost done a disservice to the families out there also dealing with Joubert Syndrome. I think people can look a...
Saturday, July 18, 2015

Final Blogs Posts - Ethan Turns 2!

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Ethan's blows out his candle! 8 long months have come and gone since I wrote my last blog update and so many things have changed, fo...
Sunday, August 31, 2014

New School, New Achievements

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I cannot believe my last blog entry was in June. We have just been doing so much traveling! But now, as we hit the end of August I find myse...
Tuesday, June 17, 2014

Ethan Starts a New School

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I love my daycare! This Monday June 16th I had to move Ethan to a new daycare. This was a really difficult decision for me.  Ethan wa...
Monday, June 2, 2014

Ethan's May Milestones

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I love horses now! May was a great month for mommy and daddy – Ethan continues to engage with us more and more. It feels so, so, so goo...
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Katrina McCullough
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